WHEN YOU ARE A MOTHER TO A RARE GENETIC DISORDER.
Being a mother to a child with a rare genetic disorder and not letting the lies of society or traditional healthcare dictate what your child is capable of:
You gotta be:
Trust your mom's intuition
Bold in being an advocate for your child
Wiser than most doctors surrounding your child
Hard on knowing your child is more than their diagnosis
Tough and willing to do your own research
Stronger and ready to grow
Cool and patient
Calm and able to respond to your child's needs
Stick together by finding your tribe
In our clinic, we have taken care of little ones with the diagnosis of:
Congenital Heart Defect
Down Syndrome
Joubert Syndrome
Edwards Syndrome
Ehlers Danlos Syndrome
Fragile X Syndrome
PPP2R1A
5q Duplication Syndrome
Hydrocephalus
Epilepsy
Cystic Fibrosis
+ more.
However, the little ones who have parents that didn't allow the diagnosis to dictate their child's future are children that we have seen thrive over the years and shown the traditional healthcare model that they are capable of more.
Need help finding a mama that knows what you are going through, feel free to reach out and let us know and we can help introduce you to one of our friends. <3